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Helpful
Tips for Caregivers
1) Try
and plan time to allow your child and siblings to discuss
their feelings in a supportive, safe environment. Using
the instructions on your "Here for You" Sesame
Workshop DVD is a good way to start the conversation. You
can also ask for help from professional counselors who can
talk to your child and siblings about their feelings on
a level the children will be comfortable with.
2) Your
child will let you know when he is able and willing to talk
about his feelings and needs.
3) Reassure
your child that you will keep her comfortable and safe at
all times.
4) Let
your child know that he is loved, very special, and reassure
him that you will be okay no matter what he tells you.
5) It's
best to identify and talk about worries, concerns and fears
rather than hold these stressful emotions inside.
6) Prepare
a list of specific questions to ask your doctor regarding
your child's illness. It's important to understand the planned
outcome of treatments and tests, so be sure to ask your
doctor to spend time with you so that you thoroughly understand
the answers. Being an active participant in your child's
care is important, so try and ask as many questions as you
need to understand the medical as well as he non-medical
aspects of caring for your child.
Caregiver
Resources
American
Academy of Pain Management
American Academy of Pain
Medicine
American Cancer Society
American College of
Physicians
American Holistic
Medicine Association
American Pain Foundation
Blue Cross Blue Shield Association
Cancer Hope
Network
CancerCare
Candlelighters Childhood
Cancer Family Alliance
Candlelighters
Childhood Cancer Foundation
Candlelighters
for Children with Cancer
Caring Connections
Coping Magazine
Hats Off for
Cancer
Kids Cancer
Network
KidsCope
Leukemia &
Lymphoma Society
Livestrong - The Lance
Armstrong Foundation
Make-A-Wish
National Alliance
for Hispanic Health
National Association for
HomeCare and Hospice
National Cancer Institute
National Cancer Survivor’s
Day
National Family Caregivers
Association
National Hospice and Palliative
Care Organization
National Network for Child
Care
OncoNurse.com
Patient-Centered
Guide
Pediatric Brain Tumor Foundation
Ronald McDonald House Charities
Starlight Starbright
Children’s Foundation
Sunshine Foundation
SuperSibs
The Hole in
the Wall Gang Camp
The
National Children’s Cancer Society
The National
Pain Foundation
The Sunshine Kids
Visiting Nurse Associations
of America
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